ChatAbility Episode 1: Disability Inclusion
ChatAbility is a platform for our community to engage in meaningful conversations that are important to people living with disability.
Read moreBy Jane Morrell, Founder of Carer Solutions
As we celebrate Carers Week, I find myself reflecting on the journey that led me to create Carer Solutions. While some may be familiar with our story, I want to take this opportunity to delve deeper into the experiences and that have shaped who we are today.
Fifteen years ago, I was working for a disability provider, tasked with setting up information initiatives and community days for individuals living with disabilities and their families. During these events, I often engaged in informal conversations with Carers (primarily single parents and grandparents) who were often overwhelmed and burnt out.
Their stories revealed a distressing reality regarding Providers at the time. There was no choice, and many received Support Workers who didn’t meet their specific needs, who struggled to complete essential tasks, or who simply didn’t show up at all. Others, due to their geographic location, lacked access to the support they desperately required.
What struck me most was the profound sense of frustration and exhaustion these Carers expressed. They felt unheard, and some had lost trust in the disability system, choosing to forgo support entirely. I remember thinking, “How can we live in such a progressive country and allow this to happen?”. It ignited within me a strong sense of responsibility to respond.
I spent my evenings and weekends researching and developing a business plan with the objective of supporting these Carers. This initial concept, rooted in a simple payroll idea, aimed to give them the option to employ their own chosen workers.
However, when I presented my ideas to the board of my organisation, I was met with resistance and a flat “no”. I was told to “stay in my lane” and reminded of the stark reality that they were funded to “provide support and information” and had no appetite for expanding beyond that. What about really helping people that needed it though? What about providing people with precisely what they needed? Surely, we cared that much?!
The journey home that night was an emotional rollercoaster; I felt angry, disheartened, and utterly compelled by the voices of the Carers I had met. I knew I couldn’t ignore this, so the following week, I resigned.
To truly understand the challenges families faced, I spent the following two years meeting as many Carers as possible. Each conversation shaped my ideas, ensuring that the solution I aimed to create, aligned with their needs. I drove thousands of kilometres across Australia to listen, learn, and refine my approach.
The early years of building Carer Solutions were challenging. Every time I met with peers or stakeholders in the disability sector, I felt the weight of their scrutiny. Change is not always welcomed in our sector, and I often faced comments like, ‘You’re dreaming—this is too hard.’ Perhaps I had youth on my side, as 31-year-old me remained undeterred, confident that I was on the right path.
Through countless reviews of ever-changing legislation and thousands of hours spent working with legal experts, we pioneered a solution that redefined compliance in the sector. By collaborating with regulatory bodies, including the ATO, WorkSafe, insurance brokers, and the NDIA, we were finally able to create a framework that truly supported Carers and their families.
Fast forward 13 years, and our Direct Employ Service has evolved into a solution for thousands of Australians. The success stories we hear daily validate the blood, sweat, and tears invested in this journey.
Take, for example, the beautiful Page family from Birchip – a small, remote community with a population of just 800. As a couple in their 70s, Anne and John became concerned about how their daughter would be supported. After noticing Jo’s strong connection with Wendy from the post office, they were able to ask the simple question: ‘Would you consider being Jo’s Support Worker?’
Then there’s Veronica from Millingimbi, a remote island community of around 1,400 people, where English isn’t even a second language. Veronica’s need for culturally appropriate support was critical, but she often received FIFO (Fly in fly out) workers from overseas who didn’t understand her customs or language. This led to burnout for her sister, Janita, who juggled a full-time job while also caring for their elderly mother. Through our Direct Employ model, Veronica has now employed someone local from her clan, allowing her to receive dignified support on her own terms.
As we look to the future, the conversations I had over 15 years ago remain at the core of everything we do. To all the Carers I’ve met over the years, thank you for being part of this incredible journey – I couldn’t have done it without you, and I salute you for the selfless work you perform, every single day. It’s a privilege to support you in the work you do for others – the most important work of all.