Building a strong support network is a process, but it’s one that can transform your life for the better. Whether you’re living with a disability or caring for someone who is, having a mix of people in your corner can make everything feel a little bit lighter. We appreciate this is sometimes ‘easier said than done’, but reaching out, connecting with people who understand, and asking for the help you need is sometimes essential.

We’re not putting everyone in the same box, but if this resonates, here are some simple tips on how to start building a network:

Connect with people who understand

There’s nothing quite like talking to someone who truly gets what you’re going through. These people understand your day-to-day struggles, frustrations, and wins without needing a detailed explanation. They’ve likely been through something similar!

Finding the right people or groups might take some time, but there are plenty of ways to start building these connections, both online and in your local community.

1. Online communities: The internet is a great place to find groups of people who share similar experiences. Facebook groups, Reddit forums, and disability-specific websites often host communities where people can chat, share stories, and offer advice. Many of these groups are focused on specific conditions or experiences, making it easier to connect with people who understand your unique challenges.
2. Local councils and community centres: Some host support groups or social activities for people with disabilities and their Carers. They may also offer disability advocacy services, inclusive social events, or even workshops where you can learn new skills while connecting with like-minded people.
3. Local disability organisations: The NDIS is a fantastic resource for connecting with others. They often have peer support programmes or can recommend local disability organisations that host regular events, meetups, or online forums.
4. Medical professionals: Your GP or specialist can be another great resource. They often have connections to local support groups, mental health services, or other community activities designed specifically for Carers. If you’re unsure where to start, ask your doctor for recommendations.

Friends, family, and your local community

Your family and friends want to be there for you. They might provide emotional support, practical help, or just be that person you can call when things feel overwhelming.

With the NDIS, family members are considered informal supports, which means their help is seen as a natural part of your support system. However, beyond family, you can also look to friends and others in your community who might want to play a more formal role in your support network. As paid Support Workers for your loved ones, they can help lighten the load.

Here are some examples of people in your community who might be able to fulfil this role:

• Friends or neighbours: If you have a friend who often helps with transport or household tasks, it may make sense for them to be paid for their time, especially if they’re already familiar with your needs.
• Local community members: People you interact with daily, who understand your specific challenges, can make great Support Workers. This could include:
• Hairdressers or barbers: Regular interactions with your hairdresser or barber can build a trusting relationship, and they might be able to offer more than just their professional services.
• Sporting coaches or teacher’s aides: If your child participates in adaptive sports or school activities, coaches and aides can sometimes step into more formal support roles.
• Scout leaders or youth group organisers: Leaders from community groups like Scouts or youth programmes are often well-versed in working with kids of all abilities. They could be ideal candidates to provide additional support outside of these settings.

Communicating your needs effectively

Sometimes, the hardest part is knowing how to ask for help without feeling like a burden. The truth is, most people want to help, but they don’t always know how. By being open and clear about what you need, you can ensure your family, friends, and community members are offering support in ways that truly work for you.

Here’s how to start those conversations:

1. Be specific about what you need: Whether you need someone to help with physical tasks, like getting to appointments, or emotional support on tough days, being clear can prevent misunderstandings.
2. Set boundaries: It’s okay to let people know if there are certain things you want to handle on your own. Setting boundaries ensures that the support you receive feels helpful, not overwhelming or condescending.
3. Educate when needed: Sometimes, family, friends, and even community members might not fully understand your situation. Sharing information with them can help bridge the gap and make their support more effective.
4. Have regular check-ins: Life changes, and so do your needs. Keeping the conversation open ensures that your support network evolves with you, rather than staying stuck in old patterns.

We hope this has been helpful, and please know that you don’t need to navigate this journey alone.